DownloadedFileCongratulations to my daughter Abigail Carbone. Her senior project book, The Long Road to Fabry, about her experience with Fabry Disease, illustrated by Jeff Pert (who sadly departed us earlier in 2014), will soon be available in Japanese!

We were contacted by a representative of  Japan’s Genyme Corporation division who came to the Fabry conference in San Diego in February. She received a copy of Abby’s book and brought it back with her to Japan and showed it to the coordinator of a Fabry organization out there. Because of our cross country move, moving Abby into college, and settling myself and the pets into the new home in California, the project was delayed.

We are now working with Genzyme to get the Japanese translation underway. We are very excited that her story will be told to a whole new country of people. As always, all proceeds will go to Fabry charities.

For a copy of the book in English, please click on either of the pictures.

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